We just returned from Milwaukee and wanted to make a post on today’s appointment as we know so many of you have been praying. We thank you for those prayers as the EMG was not as painful as the last one Jon had in January. However, the EMG test came back conclusive of ALS. The doctor said that Jon’s muscles are currently compensating and fighting the disease very well. ALS is very unpredictable and there is no time line the doctor could give us. There is a medicine that can possibly help tapper the progression, but it’s $1k a month and we will have to figure out if and how much our insurance might cover.
Our journey is just beginning and we have lots of things to start thinking about and preparing for. We can never thank you enough for those of you who have been praying for us on a continuous bases! We will be headed back to Froedtert on April 4th to begin regular visits at the ALS clinic.
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For those of you who are in Texas, we are currently working on making a trip back the last week of May. More details on that trip to come…..